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    April 22

    第十次骨穿,确诊MDS-RA

        这次住院医生建议我再做一次骨穿,看看病情有没有变化,这是我生病以来的第十次骨穿了,已经没有什么感觉了,只是希望骨穿结果会给我带来一些欣喜。知道这也许是在自欺欺人 因为我的外周血根本没有什么变化,骨髓更不可能这么快。骨穿结果出来,我没有看到,听医生说没有巨核细胞,并且这次诊断为MDS-RA。同时改变了治疗方案,开始促红细胞的针好像叫EPO,每周一三五打一万单位,同时开始吃沙利度胺片(反应停)每 天睡前吃75mg,还有将以前的田可和康力龙停了换达那脞早晚各200mg,安特尔继续维持原来的剂量,每天三次,每次40mg。但愿这个治疗方案会有效,我还是在满怀希望的 期盼着。

    Comments (7)

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    王晓伟wrote:
    你好,今天上班无聊的时候,不经意的在GOOGLE里输入“热爱生活”,想看看有没有什么感兴趣的东西,然后就搜到你的日志了。我身体很健康,经常打篮球,现在工作也还好,有个对我很好的女朋友。看着你的生活,对比一下我自己的,感觉我真的是拥有很多,却没有真正从心底体会出这些比你优越的地方,不懂得珍惜这些。我真心希望你能快点好起来。
    Apr. 10
    May 15
    麦咖啡 liwrote:
    赞同YOU的观点,艰苦的日子会过去的。 
    July 22
    大彬wrote:
    你好,看了你的博客,很有感慨,我是个再障,今年40多岁,得这个病已有几年光景了,一直和病魔做着抗争,看了你的文章之后,很相和你联系一下,你能告诉我你的联系方式吗.或者你给我打电话也可以.13919709978
    May 30
    youwrote:
    看着你的情况,好象自己也回到当时病重的时候。有一个朋友和我说:生病的时候觉得日子特别难熬,但是当一切都过去了以后,回过头来看看,那只是生命中很短的一段,成为一种经历!相信一切会好起来的!为了你爱你人和爱你的人,让我们一起努力!
    May 15
    虎成 李wrote:
    加油啊,只要有信心一定没问题的,我支持你~~
    May 3
    Picture of Anonymous
    zyx wrote:
    你是在那个医院看病,我想找一个专业的医院看,可能治疗方案会更好一些,总是试验性治疗,拖时间太长,对病情不利,你说呢?   
    Apr. 28

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